A Call To Action

September is Childhood Cancer Awareness month and I’ve been trying to think of ways I could raise awareness specifically about DIPG, other than adding a gold frame to my FB profile pic. Before DIPG, I never quite understood the impacts of pediatric cancer. A picture of a bald headed child doesn’t do any justice to what a child with cancer actually goes through mentally, emotionally and physically. So I found a few videos of Morgan that may shed some light for you.

The first video is Morgan telling me I don’t know what it’s like to have brain cancer (August 18). The second is Morgan telling me she’s excited about her switch activated bubble making machine because she can no longer move her arms to play with her toys like a normal child (August 29). The third is Morgan telling me “I love you for the last time (September 7). The fourth is Morgan no longer being able to tell me “I love you” (September 9).

The pain that this cancer caused is indescribable. It stripped Morgan of everything. She was no longer the happy, selfless child I knew a year ago. She felt alienated and depressed. In her words, “why did the world pick me to have cancer?”

It’s hard to give up in a culture where you’re taught to never give up, never quit. But we have to because DIPG has no cure, no treatment protocol. Nothing has changed in the last 50 years for DIPG. And Morgan is getting tired of fighting.  Unfortunately, more children will suffer like this unless we raise awareness and funding for more research on DIPG.

So please tell everyone you know about Childhood Cancer Awareness month and DIPG. Don’t just blindly share this post. TALK about it, GET MAD and DO SOMETHING about it. Volunteer, raise funds, donate items. Any support is appreciated!

Below are links for some organizations and sites that support DIPG. I am not endorsing any of these in particular but they are starting points to help you join this fight.

https://dipg.org/
http://www.curethekids.org/
https://thecurestartsnow.org/

Remember,

  1. Brain tumors are the most common cancer and cause for death in children less than 15 years old.
  2. DIPG represent 75-80% of all brainstem tumors
  3. Of the 150-300 US children diagnosed with DIPG every year, most don’t survive beyond 1 year, 10% beyond 2 years and less than 2% beyond 5 years. The median age for these children is a young 6-7 years old.

Thank you from the bottom of my heart!

Bhavana Patel